trach
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First Outpatient Doctor Appts
Mags in her magon-wagon. We have a slew of doctors appointments this week – yesterday she saw Pulmonology and Nephrology. Thankfully her lungs are clear but this cold is kicking her butt. And of course our night nurse called out… Continue reading
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Breaking Out of the Hospital
Our little warrior is heading home today after 48 days in the NICU, 13 days at home, 7 days in PICU, 24 hours at home, and back into the PICU totaling 81 days inpatient, 5 surgeries, and a real big… Continue reading
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Tracheostomy (Part 2)
Facing the doctors again after being discharged for barely 24 hours was a really difficult thing for me. It was almost embarrassing, but at this point I was done. I was done with everything. I was done fighting. I was… Continue reading


