trach

  • First Outpatient Doctor Appts

    Mags in her magon-wagon. We have a slew of doctors appointments this week – yesterday she saw Pulmonology and Nephrology. Thankfully her lungs are clear but this cold is kicking her butt. And of course our night nurse called out… Continue reading

    First Outpatient Doctor Appts
  • Breaking Out of the Hospital

    Our little warrior is heading home today after 48 days in the NICU, 13 days at home, 7 days in PICU, 24 hours at home, and back into the PICU totaling 81 days inpatient, 5 surgeries, and a real big… Continue reading

    Breaking Out of the Hospital
  • Tracheostomy (Part 2)

    Facing the doctors again after being discharged for barely 24 hours was a really difficult thing for me. It was almost embarrassing, but at this point I was done. I was done with everything. I was done fighting. I was… Continue reading

    Tracheostomy (Part 2)