PICU
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A Night of Miracles
I had two doctors come in to talk to me about our different options, the first was having us consider switching to comfort care and letting her die slowly. “We didn’t come this far and put her through this much… Continue reading
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First MRI & Abdominal Ultrasound
Remember what I said about advocating for your baby? Want to know why it’s SO important? Maggie has been recovering from her tracheostomy and Nissen Fundo surgery. She’s experienced a LOT of bumps in the road from excessive desats, clamping… Continue reading
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Be An Advocate
Biggest lesson learned to date. No one knows what it’s like stepping into this role but once you’re there, you’re fighting a constant battle. You’re ensuring the best for your child. You’re making sure the whole medical team is on… Continue reading
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Tracheostomy (Part 2)
Facing the doctors again after being discharged for barely 24 hours was a really difficult thing for me. It was almost embarrassing, but at this point I was done. I was done with everything. I was done fighting. I was… Continue reading
